publication date: Mar. 8, 2019
Conversation with The Cancer Letter CHOP’s Resnick: Big data will transition from research to the standard of care in the clinic
Director, Center for Data Driven Discovery in Biomedicine, Children’s Hospital of Philadelphia; Scientific chair, Children’s Brain Tumor Tissue Consortium and Pacific Pediatric Neuro-Oncology Consortium
Is there a need for a consolidated data commons for pediatric cancer? What are you hearing from the childhood cancer community?
I think this would be a universal answer in the pediatric cancer community: the data needs are not currently met, and it’s for a variety of different reasons that are distinguished in the pediatric setting, compared to the adult cancer landscape.
Centralization is one approach, especially as supported by disease-specific efforts or NIH entities, but there is also a likely need for federation across a decentralized data commons landscape.
Can you describe what you’ve learned in your work on data-driven discovery, and how that approach could inform the creation of a larger, federated model for databases?
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